When you buy through links on our articles, Future and its syndication partners may earn a commission. Babies born with harlequin ichthyosis have very distinctive features, including platelike scales ...

(USA TODAY) -- A mom from Washington state bathes her 1-year-old son in bleach twice a week, because she wants him to defy the odds for children born with his rare genetic skin disorder. She wants him ...

EDMONDS, Wash. — It takes about three jars of Aquaphor ointment per week to keep four-year-old Harper Foy's dry, itchy skin from splitting open every day. Harper's mom, Angie Foy, bathes her daughter ...

EDMONDS — Harper Foy arrived a month early. Her mom was out gardening when labor began. What Angie and Kevin Foy didn’t know — could never have suspected — was that their baby girl would come into ...

A mom from Washington state bathes her 1-year-old son in bleach twice a week, because she wants him to defy the odds for children born with his rare genetic skin disorder. She wants him to live a long ...

EDMONDS, Wash. - Harper Foy celebrated her first birthday last weekend, after a long and uncertain year caused by an extremely rare skin disorder that nearly killed her when she was born. “It’s an ...

Jamison Stam’s doctors gave him no life expectancy when he was born in May 2017 because of a severe genetic disorder. Now at one year old, Jamison has defied the odds, though he has to undergo weekly ...

Harlequin ichthyosis (HI) is a rare, congenital skin condition. HI affects the skin over almost the whole body of an infant, and carries a high risk of neonatal death due to severe and ...

A mom has to give her baby Jamison baths in bleach solutions and rub off skin the child was born with Harlequin ichthyosis, a lifelong, terminal genetic disorder that causes plated, cracked skin and ...