Columnist Joe MacDonald writes about developing a meditation exercise to counteract the long-term stress of his son's hospitalizations.

Guest writer Maria Relynda De Guzman shares her experience seeking diagnosis and care for her son's severe hemophilia in the ...

MacDonald bids readers farewell, she thanks her bleeding disorders community for following along with her story.

My recent columns have focused on my experience at the National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference, held Aug. 21-23 in Aurora, Colorado. I wrote about fun ...

Hemophilia is a blood disorder that is characterized by a shortage of specific clotting factors that help to form blood clots and stop bleeding. Historically, the primary treatment for hemophilia is ...

Columnist Allyx Formalejo didn't complete a pharmacy degree, but that year of study helped her participate in conversations ...

There are more treatment options available than when columnist Jennifer Lynne was diagnosed, meaning patients also need to put in the work.

Columnist Allyx Formalejo shares insight into how being a parent with a disability affects their daughter as she grows older.

I’ve been thinking lately about how resilience is discussed in the Philippines. After major storms, familiar images circulate online: weddings continuing despite floodwater inside churches, people ...

Jennifer Lynne is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. Jennifer has strong ties to the bleeding disorder ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit For this column, I chatted via email with four women to better understand their challenging and ...

Pfizer said it will stop development and commercialization of hemophilia B treatment Beqvez (fidanacogene elaparvovec-dzkt). “Pfizer has made the decision to cease further development and ...