New treatments for muscular dystrophy are moving forward, but some promising therapies have fallen short in trials, two ...

Kelsey Saxon shares how she went from surviving to healing after her son received gene therapy for Duchenne muscular ...

In the past six months, FSHD has destroyed the muscles in columnist Robin Stemple's arms and hands, and now he fears he can't play piano.

Elliott Johnson, a podcaster living with Duchenne, along with his able-bodied cohost, advocates across a wider community.

Neuromuscular disease patients and families should help shape drug development from the start, per a panel discussion at MDA Engage.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Cody Chalfan. I’m 26, from Columbus, Ohio, and I live with Duchenne muscular dystrophy ...

Rather than giving up something he enjoys, columnist Shalom Lim has learned how to adapt to change in the way he accesses ...

Last week, I traveled with my sons Max, Rowen, and Charlie to Colorado for their multidisciplinary neuromuscular clinic visit at a children’s hospital. My husband and I typically don’t both travel ...

Columnist Betty Vertin pays tribute to her 11-year-old daughter, Mary, who is wise beyond her years and always steps in to help.

I have been involved with the annual Parent Project Muscular Dystrophy (PPMD) conference since 2002. Back then, the conference was attended by fewer than 50 people, almost no one living with muscular ...

Guest writer Steve Way wants to share the things he wishes people had said to him following his diagnosis of muscular ...