Thanks to the generosity of our community, The Marfan Foundation is convening Science in Spain, a worldwide scientific meeting with the goal of moving us toward new breakthroughs, better treatments ...
The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...
El 3 de octubre de 2026, La Fundación Marfan y SIMA (Asociación Síndrome de Marfan) dieron la bienvenida a una sala llena en el Meliá Barcelona Sarrià para nuestro Simposio Internacional, Claves para ...
The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...
Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...
There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class scientists and clinicians, new ...
When 13 of the original 15 Rent cast members reunited on a festival stage in Kingston, NY, this August, there were lots of songs and lots of tears. After all, the emotional performances in front of ...
Penelope shared her first-person story for Marfan Awareness Month. Hi! My name is Penelope Robles and I’m from the Philippines. This is the story of my 4-year-old daughter, Destinee Jaye, who was ...
A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in Hollywood,, Florida. Foundation Board Chair Bert Medina gives a thumbs up at the Walk for Victory.
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