The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...

The Marfan Foundation's Science in Spain brought global experts together to share research on earlier detection, risk and quality of life.

The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...

Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...

Early-career scientists are bringing their work—and their ideas— to the 2026 Science in Spain gathering. There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class ...

Knowledge is power. We want to make it as easy as possible for you to access information from our world-renowned Professional Advisory Board and other leading medical experts on Marfan and related ...

If a dissection is suspected, a person needs immediate medical attention and should go to a hospital emergency department right away. What you can do: Unless someone has a known diagnosis of Marfan ...

The Marfan Foundation is pleased to announce the addition of two staff members who will play a direct role with members of our Marfan syndrome and related disorders community. Suśan Sobers joined the ...

Note: This story discusses loss of a young person’s life due to a genetic aortic condition. Mike Osuna and Jeanette Garcia-Osuna remember the first time they heard the words “Marfan Syndrome.” Just a ...