In an exclusive Q&A, a Biogen exec discussed the developer's quest to 'rapidly' bring its experimental SMA therapy salanersen ...

For Cure SMA, August is the time to shine a spotlight on the SMA community and to help raise awareness about the rare genetic ...

When SMA symptoms like muscle weakness leave her feeling like a Muppet, columnist Connie Chandler depends on the strength of ...

Columnist Helen Baldwin endured a devastating loss to SMA, but her experience led to friendships with people fighting ...

Society labels Disabled people as symbols of pity or inspiration. A line in "Superman" resonated with columnist: "I'm human." ...

Ryan Manriquez recalls his first Cure SMA conference, finding laughter, connection, community while rolling through Disneyland with friends.

From accessibility to maps to food and more, Allie, Jose, Shaniqua, Andrew, and Ryan share tips for visiting theme parks with SMA.

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.