Columnist Brianna Albers tends to make mountains out of molehills, a sure sign that living with SMA has resulted in illness anxiety.
In an interview-based study, adults with SMA reported a lack of coordination during their transition from pediatric care once ...
Nearly all children with spinal muscular atrophy who started on Evrysdi before symptom onset are walking after three years, ...
For people with spinal muscular atrophy, physical therapy can help support mobility, strength, and quality of life, regardless of SMA type.
Columnist Helen Baldwin worried the baby who arrived May 18, 1997, would keep everyone awake, but his silence signaled a ...
Columnist Connie Chandler writes of a generational disconnect with new SMA patients, but says living fully must remain their ...
SMA Europe has launched an online tool designed to help patients, doctors, and others in the spinal muscular atrophy (SMA) ...
The exergame Tales from the Magic Keep aims to boost physical activity, and proved to be a feasible tool for children with ...
In 1991, before my family had ever heard the words “spinal muscular atrophy” (SMA), my parents desperately sought out answers to my developmental delays. At just 3 months old, I began showing signs of ...
Using a specially designed back brace in addition to taking part in physical therapy may work best to reduce abnormal spine curvature, or scoliosis, in children with spinal muscular atrophy (SMA) type ...
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